Advocacy Links

Having a child with special health care needs means becoming their voice. Advocacy means providing your expertise and experience in support of an issue or need on behalf of yourself or others. Following a special needs diagnosis, families are expected to make critical decisions regarding the care and safety of a loved one in spite of often having limited resources, knowledge and finances.

Parents, health care providers, and educators, working together, can play an important role in helping to expand opportunities and enhance the quality of life for children with special health care needs.

Americans with Disabilities Act - A large collection of links to ADA regulations, technical assistance manuals and other assistance documents.
The Arc of the United States - Advocates for the rights and full participation of all children and adults with intellectual and developmental disabilities.
Center for Appropriate Dispute Resolution in Special Education - works to increase the nation’s capacity to effectively resolve special education disputes, reducing the use of expensive adversarial processes. CADRE works with state and local education and early intervention systems, parent centers, families and educators to improve programs and results for children with disabilities. CADRE is funded by the Office of Special Education Programs at the US Department of Education to serve as the National Center on Dispute Resolution in Special Education.
Connect for Kids - gives visitors the information and tools they need to learn about issues affecting children, families, and communities and to take action to improve policies and programs, and, ultimately, the fabric of our nation as a whole.
The Council for Disability Rights - Advances the rights of people with disabilities. The Council promotes public policy and legislation, public awareness through education, and provides information and referral services.
Council of Parent Attorneys and Advocates - Primary mission is to secure high quality educational services for children with disabilities.
Disability Rights Education and Defense Fund - Founded in 1979, is a leading national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities.
Family Voices - Provides families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serves as a trusted resource on health care.
Families and Advocates Partner for Education - The project is designed to address the information needs of the 6 million families throughout the Country whose children with disabilities receive special education services.
The National Organization on Disability - Provides information on becoming an advocate.
Partners in Policy Making - Popular advocacy course via the Internet - includes trainings on advocacy for local, state, and federal issues on disabilities, employment, transition, etc.
Partners Resource Network (Texas) - empowering parents of children and youth with disabilities in their roles as parents, decision makers, and advocates for their children and to promote partnerships among parents and professionals.
TASH - An international association of people with disabilities, their family members, other advocates, and professionals fighting for a society in which inclusion of all people in all aspects of society is the norm.
Wrightslaw - Accurate, reliable information about special education law, education law, and advocacy for children with disabilities.
Disclaimer: Njoy Foundation does not endorse or recommend any provider, treatment, or philosophy that families may encounter from the resources, events, or websites listed. Njoy Foundation encourages you to obtain more information about any resource prior to selecting a provider.